Generated by All in One SEO v5.0.0.1, this is an llms.txt file, used by LLMs to index the site. # Touched By ALS Bridging the gap since 2022 ## Sitemaps - [XML Sitemap](https://touchedbyals.org/sitemap.xml): Contains all public & indexable URLs for this website. ## Posts - [Ruminations](https://touchedbyals.org/ruminations/) - [Anthony's Story](https://touchedbyals.org/anthonys-story/) - as told by Alicia, his wife Our ALS journey has been one of faith, love, and trusting God day by day. When we first received the diagnosis, it was very overwhelming and emotional for both of us. But through it all, we have leaned on the Lord for strength and peace. This journey has brought - [Crystal's Story](https://touchedbyals.org/crystals-story/) - August 2014 I felt the shock of cold water being poured over me as I participated in the ALS ice bucket challenge. Ironically, eight years later in August 2022 I felt a similar shock when I was given the diagnosis of Amyotrophic Lateral Sclerosis. As a wife, mother, daughter, sister, coworker, and friend; my life - [James's Story](https://touchedbyals.org/jamess-story/) - My ALS story started around December 2016. I worked for Ingles Market as a Meat Department Manager and had been employed there for 20 years. One day the boss man called me into the office and asked if I had noticed a change in my voice. After quite a few doctor visits and numerous tests, - [A drop in the bucket](https://touchedbyals.org/a-drop-in-the-bucket/) - A drop in the bucket - I got an email yesterday from a precious lady that simply said, "what is this I hear about a gene being found that is responsible for ALS?" Later on in the day I was tagged by some of my Facebook friends talking about some new things going on in - [Martin's Story](https://touchedbyals.org/martins-story/) - It was September 2019, things seemed pretty normal. I had just completed PT for a frozen right shoulder, was hitting the weights again, and clicking off 6-minute training miles in preparation for some running races. I was 60 and feeling pretty good. Except I couldn't seem to get my strength back in my right shoulder. - [Mary's Story](https://touchedbyals.org/marys-story/) - My ALS journey started back in February 2021. I had dental work done and after that I started noticing a slur in my speech. At first I laughed it off, I was drunk without drinking! No big deal, I thought, I felt fine. In June of that year, I went to my family doctor and - [Chris's Story](https://touchedbyals.org/chriss-story/) - as told by Martha, his wife In December 2021, Chris underwent inguinal hernia surgery, but never fully recovered. He developed muscle twitches and drop foot, which his doctor said was not caused by surgery. He began eating less and less – my estimate was under 700 calories a day. Then Chris began having gall bladder - [Thank you for supporting our 2nd Annual Kiss My ALS Gala!](https://touchedbyals.org/thank-you-for-supporting-our-2nd-annual-kiss-my-als-gala/) - 10.4.25 ✨ What an incredible night! Our 2nd Annual Kiss My ALS Gala was a huge success, and we are so grateful to everyone who made it possible — from our amazing sponsors and volunteers to every guest who joined us. Your support will have a lasting impact on those we serve, helping us bring - [Thank you! Our first annual Kiss My ALS Gala was successful beyond our wildest expectations!](https://touchedbyals.org/2024-kiss-my-als-thank-you/) - THANK YOU!!! Our first annual Kiss My ALS Gala was successful beyond our wildest expectations. Thank you to each and every individual that joined us yesterday evening to support Touched By ALS and raise funds for ALS patients in need. We will be accepting donations to count towards our gala fundraising total through the end - [Grant from Dabo's All In Team Foundation for 2025!](https://touchedbyals.org/grant-from-dabos-all-in-team-foundation-for-2025/) - 💜 We’re All In! 💜 Touched By ALS is thrilled to share that we’ve been awarded a grant from Dabo's All In Team Foundation! 🙌 This incredible support helps us continue our mission of providing hope, care, and critical resources to ALS patients and families right here in the Upstate. A huge thank-you to Dabo’s - [Join us for the Hollowine 5k Walk/Run](https://touchedbyals.org/join-us-for-the-hollowine-5k-walk-run/) - We are so excited for this years 5k! Wear your best costume and join us! To sign up: https://runsignup.com/Race/SC/Marietta/KFWHalloWine5K Event Location Kennington Family Winery 507 Beaver Dam Road Marietta, SC 29661 View Location on Map #5k #winery #touchedbyals — at KFWinery. - [Thank you Home Team BBQ!](https://touchedbyals.org/thank-you-home-team-bbq/) - We cannot express our gratitude enough to Home Team BBQ of Greenville for their outpouring of love and support! They raised over $142,000 for Tacos for Tom during the month of June. Touched By ALS was honored to receive a portion of the proceeds. We are so thankful to have connected with this amazing group - [Greenville Theatre's inspiring words and support](https://touchedbyals.org/greenville-theatres-inspiring-words-and-support/) - During the run of TUESDAYS WITH MORRIE, Greenville Theatre was proud to partner with fellow non-profit organization, Touched By ALS, to bring further awareness to this disease and the incredible work they are doing as an organization to support families of the Upstate impacted by ALS. We are honored to announce that thanks to YOUR - [See us on WYFF’s 4 THE RECORD](https://touchedbyals.org/see-us-on-wyffs-4-the-record/) - Touched By ALS Board members Sarah Eaton, Margaret Clayton and Jared Cumbee; and volunteer John Black talked with Nigel Robertson, the host of WYFF’s 4 THE RECORD about ALS. The interview aired on Sunday, August 10: https://www.wyff4.com/article/4-the-record-als/65655636 - [Golf Tournament Announced](https://touchedbyals.org/golf-tournament-announced/) - 1ST ANNUAL TOUCHED BY ALS GOLF TOURNAMENT on AUGUST 11, 2025 at GREEN VALLEY COUNTRY CLUB. A day of golf followed by a reception with ticket raffles and awards. - [Partnership with Home Team BBQ -- support TACOS FOR TOM](https://touchedbyals.org/partnership-with-home-team-bbq-support-tacos-for-tom/) - Touched By ALS is launching a community partnership with Home Team BBQ. Details of the partnership will be announced soon. Meanwhile, we are supporting TACOS FOR TOM, an amazing fundraising campaign by our friends at Home Team BBQ of Charleston, SC. Throughout the month of June, all Home Team BBQ locations, including Home Team BBQ - [Greenville Theatre donates $3.6K to Touched by ALS](https://touchedbyals.org/greenville-theatre-donates-3-6k-to-touched-by-als/) - Megan Fitzgerald May 19, 2025 Greenville Theatre recently donated $3,628 to Touched By ALS. The Greenville-based nonprofit provides financial assistance and emotional support to people living with amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. The incurable nervous system disease affects the nerve cells in the brain and spinal cord, leading to a loss - [Tuesdays with Morrie](https://touchedbyals.org/tuesdays-with-morrie/) - Greenville Theatre is proud to be partnering with TBALS during "Tuesdays with Morrie" Sunday, April 27, 2025 - What an AMAZING weekend at Greenville Theatre! “Tuesdays with Morrie” is an amazing story, and this cast brought that story to life in a magnificent way. Thank you to Max, Angie, and the entire staff at Greenville - [What is ALS?](https://touchedbyals.org/what-is-als/) - by Suzy Hobbs, FNP, Prisma Health as published in All About Seniors - www.allaboutseniors.org What is ALSDownload - [Grant recipient for 2024 from Dabo's All In Team Foundation!](https://touchedbyals.org/grant-recipient-for-2024-from-dabos-all-in-team-foundation/) - Touched By ALS is honored to have been named a grant recipient for 2024 from Dabo's All In Team Foundation! We are honored to have been able to attend the celebration luncheon in Clemson today. We look forward to using this grant to continue our mission of bridging the gap for those living with ALS. - [2024 Kiss My ALS Gala Announced](https://touchedbyals.org/2024-gala-kiss-my-als-gala-announced/) - We are thrilled to announce our first annual gala in honor of our Upstate SC community of pALS and the generous supporters who make our work possible. Join us for an unforgettable night for a worthy cause. more information » - [Local event donates proceeds to Touched By ALS](https://touchedbyals.org/local-event-donated-proceeds-to-touched-by-als/) - Touched By ALS is honored to have received proceeds raised from the Business Excellence Symposium event hosted by ASE Private Wealth™. Thank you to all who made this possible! In January, ASE Private Wealth™ participated in the first ever Business Excellence Symposium. Proceeds from the event, in partnership with BNY Mellon Wealth Management, Elliott Davis, - [Grant from Dabo's All In Team Foundation for 2022](https://touchedbyals.org/touched-by-als-receives-grant-funding-from-dabos-all-in-team-foundation/) - We are so excited to have been selected to receive grant funding from Dabo's All In Team Foundation for the 2022-2023 grant cycle! Thank you Dabo Swinney and Clemson University for choosing Touched By ALS as a recipient! Touched By ALS is honored to have been selected to receive funds that will allow us to - [Grant from Dabo's All In Team Foundation for 2023](https://touchedbyals.org/news/) - We are honored to have been chosen as a recipient again this year for a grant from Dabo's All In Team Foundation! Thank you to Dabo and the entire foundation team for your continued support of Touched By ALS! - [THANK YOU, 2022! A Kick-off event for Touched By ALS](https://touchedbyals.org/thank-you-2022/) - The year 2022 will always be special to us - it’s when Touched By ALS became an official nonprofit organization! Our team is forever grateful to everyone who has been with us along the journey. We appreciate the continued support, and we are even more excited to see what 2023 brings. Stay tuned for updates! - [Support Group meets first Thursday every month](https://touchedbyals.org/tbals-support-group-meets-first-thursday-of-every-month/) - When: First Thursday of every month, 5:30 - until Where: ALS Clinic Office, 200 Patewood Dr., Suite B350, Greenville, SC 29615 Why: Come get to know fellow PALS! Touched By ALS will be providing refreshments and snacks for the group. ## Pages - [Welcome](https://touchedbyals.org/) - Touched By ALS - Empowering the Upstate SC community to fill the gap for those Touched By ALS, by providing resources to assist with financial burdens, as well as physical, emotional, and spiritual needs - [Volunteer](https://touchedbyals.org/volunteer/) - Volunteer with Touched By ALS Touched By ALS is a small community based group with gigantic expectations. We are always looking for volunteers and if you have not heard that you are wanted and needed then here is your opportunity. Thank you for your interest in helping our pALS and their caregivers and families. Volunteers - [Volunteer Inquiry](https://touchedbyals.org/volunteer/volunteer-inquiry/) - [2026 Signature Events](https://touchedbyals.org/2026-signature-events/) - 2026 Signature Events PRESENTED BY Sponsorship Information Click here to DOWNLOAD Signature Event Sponsorships PDF GO TO SIGNATURE EVENTS HOME PAGE Our 2026 Signature Events Partners Platinum Playing Sponsors Platinum Non-Playing Sponsors Gold Playing Sponsors Gold Non-Playing Sponsors Comfort Cart Sponsors Other Sponsors Par 3 Sponsors - [Become a Partner](https://touchedbyals.org/become-a-partner/) - Become a Partner At Touched By ALS, partnership means standing with families beyond a single moment. We work with businesses and organizations in two primary ways, depending on the nature of the support. Community & Corporate Partners Community & Corporate Partners support Touched By ALS beyond a single event. These partners help sustain our mission - [Our Board](https://touchedbyals.org/our-board/) - Our Board Our Board serves in a working capacity in a fully volunteer-run organization. Keep calm and kick ALS. - [Programs](https://touchedbyals.org/programs/) - Programs I have been lucky, that my condition has progressed more slowly than is often the case. But it shows that one need not lose hope. ~ Stephen Hawking - [Mission & Vision](https://touchedbyals.org/mission-vision/) - About Us Mission Keep calm and kick ALS. - [Generator Loan Program](https://touchedbyals.org/programs/generator-loan-program/) - Generator Loan Program Access to reliable power and specialized equipment can be life-sustaining for individuals living with ALS. The Life-Sustaining Generator Loan Program provides Ryobi generators to individuals with ALS who rely on ventilators or other life-sustaining medical equipment requiring electricity. Through a partnership with Ryobi, generators are loaned to families during periods of medical - [Emergency Assistance](https://touchedbyals.org/programs/emergency-assistance/) - Emergency Assistance Life with ALS is unpredictable. This program provides one-time emergency assistance when families face urgent or unexpected expenses. This program is designed to respond quickly when families experience a financial crisis that threatens patient safety, stability, or continuity of care. Purpose ALS often brings sudden and unpredictable challenges. Families may encounter emergency expenses, - [In-Home Assistance Program](https://touchedbyals.org/programs/in-home-assistance-program/) - In-Home Assistance Program Caring for a loved one with ALS is physically and emotionally demanding. This program helps families access professional in-home care when additional support is needed by providing $3,000 direct grants to families affected by ALS to help cover the cost of in-home care services. The program is designed to ease caregiver burden, - [Family Sponsorship Program](https://touchedbyals.org/programs/family-sponsorship-program/) - Family Sponsorship Program The Family Sponsorship Program provides ongoing, relational support to families affected by ALS who are facing facing long-term and evolving needs. Through this program, Touched By ALS partners with a family to help cover essential household and care-related expenses, offering stability, dignity, and peace of mind during an incredibly difficult journey. Purpose - [What We Do](https://touchedbyals.org/what-we-do/) - Programs Our Mission I have been lucky, that my condition has progressed more slowly than is often the case. But it shows that one need not lose hope. ~ Stephen Hawking - [Privacy Policy](https://touchedbyals.org/privacy-policy/) - Who we areOur website address is: https://touchedbyals.org.CommentsWhen visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service - [Past Events](https://touchedbyals.org/past-events/) - 10.4.25Thornblade Country Club What an incredible night! Our 2nd Annual Kiss My ALS Gala was a huge success, and we are so grateful to everyone who made it possible. READ MORE » Our first annual Kiss My ALS Gala was successful beyond our wildest expectations. We raised over $210,000! Thank you for your generosity! - [Our Story - Unabridged](https://touchedbyals.org/our-story/our-story-unabridged/) - Who We Are Our Mission Keep calm and kick ALS. - [Our Story](https://touchedbyals.org/our-story/) - About Us Our Story Keep calm and kick ALS. - [Our Sponsors](https://touchedbyals.org/our-sponsors/) - Our Sponsors Many thanks to our sponsors who have made Touched By ALS a reality. gold sponsors thanks to the following companies for contributing to our silent auction - [Our Impact](https://touchedbyals.org/our-impact/) - March 2025In home care (~ 178 hours) $6,253.87Interior Renovations for Accessibility $ 2,630.93Total March Spending $8,884.80 February 2025In home care (~ 92 hours) $3,226.90Personal Care $1,819.91Generators $1,640.88Total February Spending $6,687.69 January 2025In home care (~ 174 - [How To Help](https://touchedbyals.org/how-to-help/) - How To Help So I close in saying that I may have had a tough break, but I have an awful lot to live for. ~ Lou Gehrig - [Golf Tournament Registration Thanks](https://touchedbyals.org/golf-tournament-reg-thanks/) - Thank You! Thank you for joining us in supporting Touched By ALS and being a part of the 1st Annual Touched By ALS Golf Tournament Fundraiser! We will be in touch with updates and information. Meanwhile, if you have any questions or would like to discuss how you can get involved, don’t hesitate to reach - [Fundraise](https://touchedbyals.org/fundraise/) - Fundraise Touched By ALS is a small community based group with gigantic expectations. We are always looking for volunteers and if you have not heard that you are wanted and needed then here is your opportunity. You may be asking yourself what you could do to help. Well, we have so many needs that the - [Donate](https://touchedbyals.org/donate/) - Donate Make a difference in the lives of South Carolina families who have been Touched By ALS Touched By ALS is an all-volunteer organization with no physical office space and little overhead. Therefore your donation is maximized. All donations support the needs of our pALS and their families of the Upstate. Thank you for your - [DEV Impact](https://touchedbyals.org/dev-impact/) - I have been lucky, that my condition has progressed more slowly than is often the case. But it shows that one need not lose hope. ~ Stephen Hawking - [Corporate Sponsorship](https://touchedbyals.org/corporate-sponsorship/) - Corporate Sponsorship Touched By ALS is seeking like-minded businesses that are interested in partnering with our organization to further our mission. We believe that one of our best strategies to facilitate the growth and success of Touched By ALS is for alignment with organizations that have built our community. Become an Annual Partner... and help - [Contact Us](https://touchedbyals.org/contact-us/) - Contact Us Keep calm and kick ALS. - [ALS Tips](https://touchedbyals.org/als-tips/) - ALS Tips When all this started, I asked myself, 'Am I going to withdraw from the world, like most people do, or am I going to live?' I decided I'm going to live - or at least try to live the way I want, with dignity, with courage, with humor, with composure. ~ Mitch Albom, - [ALS Resources](https://touchedbyals.org/als-resources/) - ALS Resources When all this started, I asked myself, 'Am I going to withdraw from the world, like most people do, or am I going to live?' I decided I'm going to live - or at least try to live the way I want, with dignity, with courage, with humor, with composure. ~ Mitch Albom, - [ALS FAQs](https://touchedbyals.org/als-faqs/) - Frequently Asked Questions When all this started, I asked myself, 'Am I going to withdraw from the world, like most people do, or am I going to live?' I decided I'm going to live - or at least try to live the way I want, with dignity, with courage, with humor, with composure. ~ Mitch - [2025 Golf Tournament](https://touchedbyals.org/2025-golf-tournament/) - 1ST ANNUAL TOUCHED BY ALS GOLF TOURNAMENT foundation sponsor other sponsors Lunch sponsor Reception sponsor Beverage station sponsor Beverage station sponsor Beverage station sponsor Par 3 sponsor Par 3 sponsor Par - [2025 Gala](https://touchedbyals.org/2025-gala/) - We are thrilled to announce our 2nd Annual Kiss My ALS Gala in honor of our Upstate SC community of pALS and the generous supporters who make our work possible. Join us for an unforgettable night for a worthy cause. 10.4.25 Join Us! Thornblade Country Club 1275 Thornblade Blvd Greer, SC 29650 live music - - [2024 Gala](https://touchedbyals.org/2024-gala/) - 2024 Kiss My ALS GALA benefitting Touched By ALS We are thrilled to announce our first annual gala in honor of our Upstate SC community of pALS and the generous supporters who make our work possible. Join us for an unforgettable night for a worthy cause. 10.26.24 Join Us! The City Club of Greenville 55 - [Donate](https://touchedbyals.org/donate/donate/) - Donate Make a difference in the lives of South Carolinafamilies who have been Touched By ALS - [Donate Qgiv](https://touchedbyals.org/donate/donate-qgiv/) - Donate Make a difference in the lives of South Carolinafamilies who have been Touched By ALS - [Golf Tournament Registration](https://touchedbyals.org/golf-tournament-registration/) - 1ST ANNUAL TOUCHED BY ALS GOLF TOURNAMENT Tee up for a great cause — secure your sponsorship today! REGISTRATION 10:00 AM - 11:30 AM | SHOTGUN START 12:00 PM Golf Tournament Registration - [Golf Tournament Sponsorship Benefits](https://touchedbyals.org/golf-tournament-sponsorship-benefits/) - [Assistance Application *](https://touchedbyals.org/assistance-application/) - * Total financial assistance provided by Touched By ALS per individual is reviewed on a case-by-case basis. - [Thank You](https://touchedbyals.org/thank-you/) - Thank You! Thank you for helping a family living with ALS. ## Soliloquy Sliders - [Home V2](https://touchedbyals.org/?post_type=soliloquy&p=1458) - [Home](https://touchedbyals.org/?post_type=soliloquy&p=109) ## Categories - [pALS Stories](https://touchedbyals.org/category/ruminations/pals-stories/) - Stories by pALS in the SC Upstate - [Ruminations](https://touchedbyals.org/category/ruminations/) - [Musings](https://touchedbyals.org/category/ruminations/musings/) - Personal Reflections - [news](https://touchedbyals.org/category/news/) - News