ALS Awareness

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2026 Signature Events

Our 2026 Signature Events brought our community together for an unforgettable weekend of hope, compassion, and support. From our 3rd Annual Evening of Hope to the 2nd Annual Kiss My ALS Golf Classic, we celebrated, remembered, and raised an incredible **$390,032** to help families living with ALS in our community. With 156 golfers, special guests from Italy, and the incredible generosity of our sponsors and supporters, this weekend showed once again what is possible when we stand together for those facing ALS.

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Stories Mary

Mary’s Story

My ALS journey started back in February 2021. I had dental work done, and after that, I started noticing a slur in my speech. At first, I laughed it off. I was drunk without drinking! No big deal, I thought, I felt fine. In June of that year, I went to my family doctor and she questioned why I waited so long to come.

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Stories Chris 1

Chris’s Story

In December 2021, Chris underwent inguinal hernia surgery, but never fully recovered. He developed muscle twitches and drop foot, which his doctor said was not caused by surgery. He began eating less and less – my estimate was under 700 calories a day. Then Chris began having gall bladder attacks, and in March 2022, needed surgery to remove gallstones.

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Stories Martin

Martin’s Story

It was September 2019, things seemed pretty normal. I had just completed PT for a frozen right shoulder, was hitting the weights again, and clicking off 6-minute training miles in preparation for some running races.

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Stories Crystal

Crystal’s Story

August 2014, I felt the shock of cold water being poured over me as I participated in the ALS ice bucket challenge. Ironically, eight years later in August 2022 I felt a similar shock when I was given the diagnosis of Amyotrophic Lateral Sclerosis.

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