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ALS Resources

Caregiver Self-help

Caregiver stress: Tips for taking care of yourself (Mayo Clinic)
Taking Care of YOU: Self-Care for Family Caregivers (Family Caregiver Alliance)
Caregiver Burnout (Cleveland Clinic)
Family Caregiver Support (South Carolina Department on Aging)
Caregiver Resources (Medical University of South Carolina)
Support Group Meeting (SC ALS Association)

Helping Children Cope

5 Ways to Help Kids Cope with a Parent’s ALS (ALS News Today)
Talking with Children (ALS Worldwide)
Talking with and Supporting
Children and Youths
(ALS Organization)
Building Resilience in Children Through Coping Skills (Red Cross)

Newly Diagnosed with ALS

Just Diagnosed with ALS? We Are with You (I AM ALS)
Newly Diagnosed with ALS (ALS Association)
Newly Diagnosed Guide for ALS (Your ALS Guide)

ALS News

ALS News Today
ALS Association
ALS Association – South Carolina Chapter

ALS Education

Amyotrophic Lateral Sclerosis (ALS) (Mayo Clinic)
Information about Radicava
ALS Clinical Trials

Assistance

  • Appalachian Council of Government Family respite care grant
    Services for family caregivers and help with transportation
    for Greenville, Spartanburg and Anderson Counties
  • Upper Savannah Area Agency on Aging Family Caregiver Program
    Financial and transportation assistance for Laurens County

When all this started, I asked myself, ‘Am I going to withdraw from the world, like most people do, or am I going to live?’ I decided I’m going to live – or at least try to live the way I want, with dignity, with courage, with humor, with composure.
~ Mitch Albom, Tuesdays with Morrie